General financial information & assistance resources
The Catalyst Center is dedicated to improving health care coverage and financing for children and youth with special healthcare needs.
Look at your state (and other states) to see who offers TEFRA/Medicaid and similar medical healthcare assistance programs.
For resources on financial assistance look on the United Cerebral Palsy (UCP) website link below and scroll down to the “Find Financial Assistance” section in the United Cerebral Palsy Resource Guide.
Possibilities: A financial resource website for parents of children with disabilities
The Shannon Foundation: Dedicated to helping to pay for medical care for children whose families can’t afford it
United Healthcare Children’s Foundation-501(c)(3) nonprofit charity dedicated to enhancing the quality of children’s lives by providing financial assistance to help families gain access to medically related services that are not covered, or not fully covered, by the available commercial health insurance plan, and that may have the potential to significantly enhance children’s clinical conditions.
Familywize Drug Prescription Card-a free prescription discount card for people without drug prescription coverage. I heard about it on our local United Way’s Facebook Page.
Blessed with Autism was written by Christina Peck, the parent of two children with special needs. She has a background in medical sales, medical billing, and is certified in Professional Coding and uses this knowledge to in her quest to have health insurance companies pay for therapies that help minimize overwhelming out of pocket costs. Christina aims to give families the proper guidance to choose the most appropriate insurance plan and to ask ask the relevant questions to get therapies reimbursed.
Important financial and other types of documents
The following is an article featured in Forbes Magazine on financial planning for special needs relatives. I think it offers a nice summary and introduction to the the next section on Special Needs Trusts written by a local attorney and parent to a special needs child.
The Pros and Cons of a Special Needs Trust: Ensuring Your Child’s Future-an excellent resource guide presented by Friendship Circle of Michigan.
Assuring the Care of a Family Member with Special Needs-An excellent New York Times article with information offered by a financial planner who has a son with special needs as well as other financial professionals who specialize in special needs estate planning.
Preparing a Letter of Intent during the estate planning process-“The Letter of Intent, (which is a not a legal document) is the most important document that you can prepare in the estate planning process because it will help the people that will be caring for your child interpret your hopes and desires for your child.”-from Friendship Circle of Michigan