Introduction

This section of the website is dedicated to connecting you with the latest news and information in the CP world. Over time we will further divide this page by subject. For now, you will find general subject headings until we collect more material for this section. Please contact us about related news you find that we may include here. We also have a section with information about cerebral palsy treatments and interventions and related research that you may wish to visit.

Cerebral Palsy Research Network–”(CPRN) is a group doctors, therapists and patient advocates collaborating to improve treatments and outcomes for people with CP.  The network combines the expertise of doctors and therapists committed to treating CP with clinical epidemiologists and rigorous data collection practices to plan and execute high quality clinical trials and quality improvement protocols.”

CP Registry—Here you will find access to a national database called “The Cerebral Palsy Research Registry”. It is a multi-institutional collaborative effort with a mission to improve the understanding of cerebral palsy. By registering you are expressing your interest in connecting with researchers who may wish to potentially enroll your child in research studies. Signing up for the registry does not directly enroll your child in research studies.

Clinical Trials—Here you will find a a database of current clinical trials going on throughout the country. If you have an interest in having your child participate in a particular study, or wish to find our more information about one you have heard about, you should be able to find it here.

“Familial risk of cerebral palsy: population based cohort study”

The American Academy for Cerebral Palsy and Developmental Medicine presented the Best Scientific Paper Award for 2013 for the following research paper: Reduced Satellite Cell Population in Hamstring Muscles from Children with Contractures. This is a fascinating study!!

Ruling on NYC Disaster Plans for Disabled May Have Far Reach

In the UK Babies brains are being mapped in utero and after birth

Cerebral palsy research updates from Australia for 2013

Project seeks to build map of human brain

**New Weinberg Family Cerebral Palsy Center in NYC will bridge pediatric and adult care for people living with CP

Potential to Prevent, Reverse Disabilities in Children Born Prematurely, Study Suggests

Researchers turn one form of neuron into another

Applying use of SEMG technology to treat cerebral palsy-This is a very exciting development to track

Use of the treadmill or bike improves gross motor skills in non-ambulatory children with CP

University research team is developing robotic assistance device to help infants with CP learn to crawl

Woman with quadriplegia feeds herself with a mind-controlled robotic arm

A new device called Access4Kids allows children who have difficulty with fine motor skills to uses Ipads, Iphones, and similar devices with alternate gestures

Scientists discover previously unknown cleaning system in brain

Toddler calls 3-D printed medical exoskeleton her “magic arms”

“Bionic Brains and Beyond”

Katie Beckett who inspired the development of TEFRA passes away

5-Year old with CP speaks first words with the help of a computer

Florida lawsuit claims disabled kids are being kept in nursing home illegally

Study suggests video games may help kids with CP

Judge in Maine signs off on order to move young people with disabilities out of nursing homes

Man with CP reunited with family after 61 years

New technology offers breakthrough in cerebral palsy treatment

Boy with CP isolated from choir

School Bans Disabled Girl from Using Walker

6 Things You Don’t Know About Being a Special Needs Parent

Yoga for Cerebral Palsy

Genetic insights into CP

Scuba diving study yields some promising results for paraplegics

Therasuit may hold promise for kids with CP

RIC (Rehabilitation Institute of Chicago) combines dance and rehabilitation in a study aimed at developing new and innovative therapies for CP

Neural plasticity

Stroke damage in mice overcome by training which rewires brain centers-This article is further support for brain plasticity. Even though the research focuses on adult strokes and a subsequent loss of function (rather than not having yet developed the function as in CP), the findings are fascinating. Perhaps this kind of knowledge will offer further insight into how the brain works and will ultimately help neuroscientists better understand neurodevelopmental disorders like CP as well

Re-opening Windows: Manipulating Critical Periods for Brain Development

Neuroscientist and brain plasticity researcher Dr. Merzenich visits a new CP treatment facility in Copenhagen

Surprising article about how exercise improves the brain more than thinking

Hear neuroscientist Michael Merzenich speak about the latest concept of neural plasticity

Seizures

Early Warning System for Seizures Could Lead to Fewer False Alarms

Pediatric Neurologist Explores Treating Kids with Epilepsy with a Simplistic Timing Approach

Response to First Drug Treatment May Signal Likelihood of Future Seizures in People with Epilepsy

Reverse Engineering Epilepsy’s Miracle Diet

Is Intranasal Midazolam Better Than Rectal Diazepam for Home Management of Acute Seizures?

Travel

Young girl with CP misses flight after problems with TSA

World’s first disability theme park opens in San Antonio