Weekly Post
CP NOW's Research CP Award Goes to Communication Researcher

CP NOW’s Research CP Award Goes to Communication Researcher

We are proud to announce that Dr. Kristen Allison has been selected to receive CP NOW’s Research CP Award! Dr. Allison is an Assistant Professor in the Department of Communication Sciences & Disorders at Northeastern University and is the Director of their Speech Motor Impairment and Learning Lab (SMILe). She has extensive experience working with children...
Learning to let go

Learning to let go

  Last week at our neighborhood’s annual Halloween party, I thought about how much Lillian Maya has changed over the last ten years that we have lived here. During our first five years in this neighborhood, we skipped trick-or-treating because it was too overwhelming for her. She did, however, always want to go to the...
Guest blog post: "Let's get a service dog!"—or maybe not

Guest blog post: “Let’s get a service dog!”—or maybe not

This is a guest blog post for CP Daily Living written by parent advocate Jennifer Lyman A while back, after the death of our beloved dog Bear, we went dog free for a while to see what it was like.  It turns out we didn’t like living in a household without a big black furry...
Motivating your child with CP

Motivating your child with CP

Recently a grandparent of an 8-year old boy with CP asked me for ideas about how to help motivate her grandson. She said he is a happy child, but she is concerned that he is becoming a master at getting people to do things for him rather than working on developing skills himself. She believes...
When a parent faces the world of early brain injury and cerebral palsy

When a parent faces the world of early brain injury and cerebral palsy

  Imagine hearing these words spoken about your baby: Brain Injury. Neurological Disturbance. Infant Stroke. Cerebral Palsy. Do you shudder and wish to turn your attention elsewhere as you read that first line? It’s scary. I understand, but I rarely if ever share the dark side of CP and what over a million other families...
Helping Maya Access Visual Information--Reading & Academic Access Tools

Helping Maya Access Visual Information–Reading & Academic Access Tools

  It’s taken me a long while to get Maya set up at school so that she can access reading materials on her laptop computer/iPad from various electronic and print sources. As I learn about new tools I share them with all of you to use for yourselves, your family or to pass along to...
A Young Lady in the Making

A Young Lady in the Making

  Maya’s therapist said to me that she feels Maya is finally getting used to coordinating her more grown up body. She has been changing so quickly over the last 9 months and it’s been very hard for her to keep up physically and emotionally. Even though it was hard for her, she had become...
Maya's rhythm often leaves her out of the fold

Maya’s rhythm often leaves her out of the fold

“I can’t get my words out as quickly as I want to.” #feelingoutofsync #adifferentrhythm Last night as we were coming back from the Halloween party, Maya stopped at our neighbors house to get some candy. We were on the side of the road (our neighbor came down with her bowl) and she suddenly stopped talking...
Setting a consumer-centered research agenda for CP-Mission accomplished!

Setting a consumer-centered research agenda for CP-Mission accomplished!

  Last summer, CP NOW and the *Cerebral Palsy Research Network (CPRN) hosted Research CP, a comprehensive program designed to develop a *consumer centered research agenda for the CP community. Because of this groundbreaking conference, the CP community has a prioritized list of research topics that are meaningful to individuals with CP and representative of what people...
A letter to my Congressman who supported HR620-The ADA Education and Reform Act

A letter to my Congressman who supported HR620-The ADA Education and Reform Act

  Yesterday I told my South Carolina Congressman what I thought of his support and vote in favor of HR620-The ADA Education and Reform Act.  I had just received a response to my letter asking him to vote against this archaic legislation proposal. His reply detailed his enthusiastic support for its passage in the House of Representatives....
#Transitions

#Transitions

Maya just turned 11 and along with that birthday has been a host of emerging transitions for her and for us. She is a pre-teen now and there are emotional changes, vast physical changes, academic assessments and decisions that we need to make like how she approaches reading and writing and how we physically support...
Our Story

Our Story

Many people don’t realize that cerebral palsy (CP) is often the result of an infant brain injury. Our family faced this very frightening circumstance when our daughter Maya was just 34 weeks old and one week after she was born. It was an unexpected event and scary. The worst part about it was that when...