What is Cerebral Palsy?

Listen to podcast created by National Center on Birth Defects and Developmental Disabilities (3/30/2008).
Latest entries
Unpacking Maya’s Intense Feelings Before They Become Tornadoes

Unpacking Maya’s Intense Feelings Before They Become Tornadoes

Teasing apart and making sense of the behavior of a child with multiple medical issues is often difficult for parents. Sometimes, my husband and I struggle while trying to determine if Maya’s behavior is typical of children or is influenced by pain, sleep deprivation, epilepsy medication side effects, frustration with her limitations, food sensitivities, or...
Grief Exposed

Grief Exposed

Photo credit: Kelly Gaines The rare times I picture the grief I feel about Maya having cerebral palsy I envision it in a cocoon-like incubator with layers of gratitude and hope spun around it. These layers help me cope with her condition and cushion me from falling into the raw grief and sadness that hides further...
Rethinking Accessible Playgrounds

Rethinking Accessible Playgrounds

Ensuring universal accessibility and inclusive play at local playgrounds is a hot topic right now among many of my friends whose children have cerebral palsy. It’s summer time, and parents and children naturally want to go to playgrounds. These visits often reveal accessibility concerns and lead to conversations about how few recreation offerings there are...
Field Day 2014-Maya tells Mom, "I'm going, so stop pushing the issue!"

Field Day 2014-Maya tells Mom, “I’m going, so stop pushing the issue!”

When will this mom ever learn? In my attempt to protect Maya I told her teacher that we would not be attending the school’s Field Day today. I planned to make an alternate fun activity day for her at home. She was not very happy with me when she found out. We talked about it...
CVI Part Two: Dr. Christine Roman’s CVI Range Assessment

CVI Part Two: Dr. Christine Roman’s CVI Range Assessment

Since writing the first part of this series I have had the pleasure of speaking with Dr. Christine Roman the developer of the CVI Range Assessment. I also have done my best to perform this assessment on Maya. The CVI Range has a 0-10 scale, and describes three broad phases of visual processing development. Where...
"I betcha think I don't have CP anymore."

“I betcha think I don’t have CP anymore.”

Did that get your attention? It got mine this morning. Maya said this to one of our dogs as she used her new gait trainer to walk to the kitchen for breakfast. It was her first time doing this! I typically give her the option to choose her mode of transportation; crawling, wheeling in her...
Cortical Visual Impairment (CVI) & Cerebral Palsy: Underdiagnosed & Undertreated

Cortical Visual Impairment (CVI) & Cerebral Palsy: Underdiagnosed & Undertreated

This is part one of a two-part post I will be writing about CVI: Cortical visual impairment (CVI) is a neurological condition that is the leading cause of visual impairment of children in the US and the First World and is commonly seen in people with cerebral palsy (1. Good, Jan, Burden, Skoczenski, & Candy,...
Q&A with Dr. Marshalyn Yeargin-Allsopp Medical Epidemiologist & Chief of the Developmental Disabilities Branch National Center on Birth Defects & Developmental Disabilities CDC

Q&A with Dr. Marshalyn Yeargin-Allsopp Medical Epidemiologist & Chief of the Developmental Disabilities Branch National Center on Birth Defects & Developmental Disabilities CDC

Dr. Marshalyn Yeargin-Allsopp Medical Epidemiologist and Chief of the Developmental Disabilities Branch National Center on Birth Defects and Developmental Disabilities Centers for Disease Control and Prevention (CDC) USA 1. CP Daily Living: How can CDC help the CP community? Dr. Marshalynn  Yeargin-Allsopp: CDC is committed to continuing to provide essential data on cerebral palsy (CP)....
Meeting the practical and emotional challenges of Maya's growth

Meeting the practical and emotional challenges of Maya’s growth

Over the past few weeks supporting Maya has brought us some new physical challenges and unfamiliar types of back pain. Usually changes like this signal the need to adjust our daily routine and our approach to lifting and supporting Maya. Sometimes it even means we need different supportive equipment for her to better access her...
Cultivating a Balanced Therapeutic Program for Children with Cerebral Palsy and More

Cultivating a Balanced Therapeutic Program for Children with Cerebral Palsy and More

*This post is a more comprehensive version of the speech I gave at the 2013 AACPDM Family Forum. Maya was diagnosed with cerebral palsy 5 years ago and since then it has been a challenge to create an effective therapeutic program that is also in balance with the overall needs of our family. The focus...
World CP Day & 12 Months of Cerebral Palsy Advocacy Ideas

World CP Day & 12 Months of Cerebral Palsy Advocacy Ideas

It’s World CP Day! This is the 2nd annual international awareness and advocacy day for people with cerebral palsy. In honor of this day I have prepared a list of facts about cerebral palsy as well as twelve advocacy ideas for each month of the year that can help keep the momentum going. Twelve things...
CP Alliance publishes research analysis of cerebral palsy interventions

CP Alliance publishes research analysis of cerebral palsy interventions

I found an article published by a panel of researchers from CP Alliance and the University of Notre Dame reviewing research on interventions for children with cerebral palsy. I came across it the day after I wrote the post in response to the FDA warning about the use of HBOT treatment for the autism and cerebral palsy...