What is Cerebral Palsy?

Listen to podcast created by National Center on Birth Defects and Developmental Disabilities (3/30/2008).
Latest entries
"I betcha think I don't have CP anymore."

“I betcha think I don’t have CP anymore.”

Did that get your attention? It got mine this morning. Maya said this to one of our dogs as she used her new gait trainer to walk to the kitchen for breakfast. It was her first time doing this! I typically give her the option to choose her mode of transportation; crawling, wheeling in her...
Cortical Visual Impairment (CVI) & Cerebral Palsy: Underdiagnosed & Undertreated

Cortical Visual Impairment (CVI) & Cerebral Palsy: Underdiagnosed & Undertreated

This is part one of a two-part post I will be writing about CVI: Cortical visual impairment (CVI) is a neurological condition that is the leading cause of visual impairment of children in the US and the First World and is commonly seen in people with cerebral palsy (1. Good, Jan, Burden, Skoczenski, & Candy,...
Q&A with Dr. Marshalyn Yeargin-Allsopp Medical Epidemiologist & Chief of the Developmental Disabilities Branch National Center on Birth Defects & Developmental Disabilities CDC

Q&A with Dr. Marshalyn Yeargin-Allsopp Medical Epidemiologist & Chief of the Developmental Disabilities Branch National Center on Birth Defects & Developmental Disabilities CDC

Dr. Marshalyn Yeargin-Allsopp Medical Epidemiologist and Chief of the Developmental Disabilities Branch National Center on Birth Defects and Developmental Disabilities Centers for Disease Control and Prevention (CDC) USA 1. CP Daily Living: How can CDC help the CP community? Dr. Marshalynn  Yeargin-Allsopp: CDC is committed to continuing to provide essential data on cerebral palsy (CP)....
Meeting the practical and emotional challenges of Maya's growth

Meeting the practical and emotional challenges of Maya’s growth

Over the past few weeks supporting Maya has brought us some new physical challenges and unfamiliar types of back pain. Usually changes like this signal the need to adjust our daily routine and our approach to lifting and supporting Maya. Sometimes it even means we need different supportive equipment for her to better access her...
Cultivating a Balanced Therapeutic Program for Children with Cerebral Palsy and More

Cultivating a Balanced Therapeutic Program for Children with Cerebral Palsy and More

*This post is a more comprehensive version of the speech I gave at the 2013 AACPDM Family Forum. Maya was diagnosed with cerebral palsy 5 years ago and since then it has been a challenge to create an effective therapeutic program that is also in balance with the overall needs of our family. The focus...
World CP Day & 12 Months of Cerebral Palsy Advocacy Ideas

World CP Day & 12 Months of Cerebral Palsy Advocacy Ideas

It’s World CP Day! This is the 2nd annual international awareness and advocacy day for people with cerebral palsy. In honor of this day I have prepared a list of facts about cerebral palsy as well as twelve advocacy ideas for each month of the year that can help keep the momentum going. Twelve things...
CP Alliance publishes research analysis of cerebral palsy interventions

CP Alliance publishes research analysis of cerebral palsy interventions

I found an article published by a panel of researchers from CP Alliance and the University of Notre Dame reviewing research on interventions for children with cerebral palsy. I came across it the day after I wrote the post in response to the FDA warning about the use of HBOT treatment for the autism and cerebral palsy...

Musings about Maya’s Food Sensitivities

A few weeks ago we figured out that in addition to being lactose intolerant Maya is gluten intolerant. How I came to figure this out is a longer story, but it really surprised me despite the recent media hype surrounding food sensitivities. Don’t misunderstand me. I have friends and friends whose children have severe food...

Maya’s Dad took off his emotional blinders today

We were helping Maya with her homework last night. It was hard for her and we have to continuously find creative ways of helping her learn and process information in meaningful ways. Many kids struggle with homework and learning so I take it in stride and focus on finding her learning path. But something finally...

The Bigger Issue about the FDA Warning Against HBOT Treatment for Cerebral Palsy

I  came across an article today on Disability Scoop about the FDA issuing a warning to consumers regarding the use of hyperbaric oxygen therapy for Autism and Cerebral Palsy. Here is the concern stated by Nayan Patel of the FDA: “Patients may incorrectly believe that these devices have been proven safe and effective for uses...
CP Daily Living's Road Travel Essentials

CP Daily Living’s Road Travel Essentials

Our family loves to travel. Getting away rejuvenates us and we rely upon our family trips for that much needed change of scenery and break from routine. Sure there are surprises we stumble upon that require creative troubleshooting. Facing new accessibility challenges bring out different emotions for all of us yet, in spite of these...
The Struggle to Stop Viewing Our Children Through Clinical Eyes

The Struggle to Stop Viewing Our Children Through Clinical Eyes

It’s so easy for us parents to become lost in thinking about how our children compare with their same aged peers. From an early age, children at risk for developmental delays/disabilities are tested, categorized, and monitored. There are some good reasons for doing this such as identifying and tracking areas that may need support. But,...